Health literacy in adolescents and young adults with cerebral palsy: a mixed methods systematic review
Reviewed by Manjula Manikandan
Citation: Ding JY, Cleary SL, Morgan PE. Health literacy in adolescents and young adults with cerebral palsy: a mixed methods systematic review. Disability and Rehabilitation. 2024 Feb 2:1-3. https://doi.org/10.1080/09638288.2024.2311879
Study type/population: This mixed methods systematic review investigated and collated evidence of health literacy, and health literacy needs in young people aged 13-38 years with cerebral palsy (CP).
Key findings: Across the eleven studies, involving a total of 363 participants, it was evident that young people with CP used range of strategies to address their specific information needs. They highlighted a need for the development of a "toolkit" comprising essential skills and emphasizing the importance of experiential learning. Trusted sources were the preferred method for acquiring health knowledge. However, challenges were noted in accessing timely, relevant, and specific health information from healthcare professionals. Information gaps were particularly evident in areas such as ageing with CP, sexuality, and navigating intimate relationships. Notably, there was limited data available regarding the relationship between health literacy and quality of life (QoL) in this population.
Translation to Practice: Young individuals with cerebral palsy require tailored and credible health information to enable informed decision-making and increased participation in healthcare choices. The development of self-efficacy and capacity-building are crucial in identifying and addressing emerging health literacy needs. Despite its importance, health literacy outcomes are often overlooked in this population. Key components of health literacy include capacity building, identity development, and self-management skills, with unmet information needs identified in areas such as relationship management, sexual health, and aging with cerebral palsy. Early intervention strategies to enhance health literacy during adolescence can foster greater autonomy in healthcare decision-making as individuals transition into adulthood.