AACPDM President’s MessageDear AACPDM Members, Summer Greetings from the AACPDM Leadership! I hope that you are enjoying the summer and that you are able to take some time to rest and rejuvenate over the next couple of months. The 78th Annual Meeting in Quebec City is quickly approaching and it is going to be an exciting event packed with fun and opportunities to learn and connect with colleagues. Thank you to Dr. Laurie Glader and the 2024 meeting planning team for all their hard work and dedication involved with pulling together such an engaging program. Register today! We welcome all active AACPDM Members to participate in the 2024 Virtual Business Meeting that will take place on October 10, 2024 at 7:00 – 8:00 pm CT. We have received positive feedback about how online business meetings have increased access. Please watch for more details in your email and in the “Member’s Only” section of the AACPDM website later this summer. I would like to thank all the board and committee members for their dedication to AACPDM- it has been such a privilege to work with you all this past year. Join the business meeting to hear the updates from our committees. If you are interested in CME material, please consider the summer eCourse on "Spine Deformity in Cerebral Palsy: A Comprehensive Approach.” This eCourse takes a multidisciplinary and multispecialty approach to evaluating, treating, and recovering from scoliosis. Targeted specifically to those treating children and young adults with cerebral palsy, experts from orthopaedic surgery, neurosurgery, pulmonology, comprehensive pediatrics, anesthesiology, physical medicine, and rehab will discuss their role in managing the care around the time of scoliosis surgery. As an AACPDM member, you will notice special email announcements on the last Friday of the month that highlights open job positions from the AACPDM Job Posts. Please continue to encourage postings and monitor positions. The AACPDM is like no other professional society, we are dedicated to advancing the health and well-being of all individuals with cerebral palsy and other childhood-onset disabilities. Our members are like a family. Please continue to support the Academy through your participation in events, your membership, and general donations. Each dollar you donate makes a measurable difference for our Academy. There are several ways you can support the AACPDM! As an Academy we are always looking ahead to the next season for successful applications, projects, and exciting news. Enjoy the summer and I hope to see you in October! Sincerely ,
M. Wade Shrader, MD AACPDM First Vice President's UpdateRegistration is Open for “Translating Discovery” Registration is open for the 78th AACPDM Annual Meeting! The Annual Meeting Planning Team of Laurie Glader, MD, Sruthi Thomas, MD, PhD, and Vedant Kilkarni, MD looks forward to welcoming you to beautiful Quebec City, October 23-26, 2024. AACPDM members come from a wide variety of professional backgrounds and are deeply committed to research, quality improvement, education and advocacy revolving around the care of individuals with childhood onset disability. Our annual meetings celebrate these shared passions with presentations of our latest work. This year, the meeting theme of “Translating Discovery” places special emphasis on the journey of ideas, spanning the arc from bench to implementation. The additional nuance of translation celebrates our multi- cultural backgrounds and collaborations. Information and ideas shared at the AACPDM Annual Meeting have a ripple effect as they go on to be shared at home institutions with multi-disciplinary team members, researchers and decision makers. The Annual Meeting will kick off with a wide variety of pre-conference sessions. Consider the following as you register:
Come mingle with your colleagues from 6:00-8:00 pm during the October 23, Wednesday evening Welcome Reception held in the main exhibit hall. If you are a new member or an early career member, we hope you will join the AACPDM Membership Committee thirty minutes prior to the Welcome Reception for an informal Meet and Greet gathering. We also encourage you to spend time with our supporters in the Exhibit Hall. We look forward to having you join us during the many fun activities which will be held throughout the program. Enjoy socializing with other meeting attendees during the networking gala, which will be held Friday evening at the Voltigeurs de Québec Armoury. This beautiful venue, constructed between 1885 and 1888, is a National Historic Site and was originally built as a Gothic Revival drill hall. You can also enjoy the city and convention center by way of a scavenger hunt supported by the Adapted Sports and Recreation and the Communications Committees. The meeting is always busy and inspiring, but this year we have built in a window of time to allow you an opportunity to explore the surroundings, including the fortified colonial core of Vieux Quebec with its stone buildings and winding streets. A list of local “Things to Do” – including many gastronomic opportunities – will be available for your perusal.
Come and see old friends and welcome new colleagues. Our membership is broad and diverse! As a multi-disciplinary organization, we can offer a variety of learning opportunities and CME/CEU’s, and an announcement will be made at the Annual Meeting regarding options for selecting on-demand content that will be available until January 15, 2025. À bientôt! See you in Quebec City!
Laurie Glader, MD
Past President’s ReflectionDr. Gayle G. Arnold, a quiet, humble leader Every year the AACPDM recognizes the legacy and contributions of Dr. Gayle G. Arnold through a named award. There is significance and meaning behind the naming of one of our most prestigious awards after this giant of a man. “Dr. Gayle G. Arnold was a quiet, humble guy who down-played his considerable influence in the field of children with disabilities, and his many contributions to the AACPDM. As Medical Director of the Richmond CP Center he was an early leader in developing community diagnostic and treatment services, and the Center became a model for these much needed facilities. Dr. Arnold was particularly interested in promoting research in the field of cerebral palsy, and in 1968 this interest led to the creation of the Richmond CP Center Award. Today, this is called the “Gayle G. Arnold Best Scientific Paper” award, and is the most prestigious award of the Academy, presented annually to authors of the best scientific paper.”
Gayle Arnold was a modest Virginia gentleman who served the Academy as secretary and treasurer from 1978-88 and finally, after much cajoling, agreed to be president in 1990. That same year, Dr. Arnold was honored as one of President George Bush’s “Points of Light” in his campaign to highlight the unselfish contributions of individual Americans to the public well-being. Dr. Arnold was trained all over the mid-Atlantic coast except for a year as pediatric chief resident at McGill University in Montreal. He returned to Richmond in 1951 where he has spent his career in general pediatrics with, of course, a special emphasis on children with developmental disabilities. He was clinical professor of pediatrics at the Medical College of Virginia in Richmond. In the mid-1940s, the Richmond Cerebral Palsy Center was founded by an occupational therapist in the basement of a church. She arranged for the children to be seen by Dr. Phelps in Baltimore and return with their prescriptions for therapy. In 1953, Dr. Ernest Carpenter and Dr. Arnold started the first medical clinic in that same church. The CP Center has grown and flourished, and Dr. Arnold has remained medical director for many years. He and Dr. Carpenter were instrumental in establishing the Richmond Cerebral Palsy Fund for the AACP in 1968. These moneys were used to support research via grants and the annual Richmond CP Center Award. That award today is known as the Gayle G. Arnold award. Expert Taken from “The First Fifty Years: 1946-1996. The History of the American Academy for Cerebral Palsy and Developmental Medicine 50th Anniversary.” Donate to the Past President's Fund!
AACPDM Virtual Business Meeting-October 10The Membership Business Meeting will be held virtually from 7:00-8:00 pm CT on October 10, 2024. All members are encouraged to attend, and can log-in using the AACPDM member’s only platform located at www.aacpdm.org. The meeting will consist of Committee updates and information on the State of AACPDM. More details will follow closer to the event.
Committee & Council UpdatesMembership Committee Update The membership committee continued its webinar series with the webinar entitled "Maximizing Your Productivity with AACPDM Resources” on May 23rd. We plan one further webinar prior to the annual meeting with the focus on how to prepare to present at the annual meeting. We are now beginning our annual outreach to non-renewing members to invite them to complete their renewal. We invite those reading this newsletter who have not renewed their membership to renew and to encourage their colleagues to join as well.
Community Council Update Planning for the 2024 Community Forum for is near completion. Sessions will include discussions on sleep, dystonia, genetics, interventions for cerebral palsy, the role of the Physiatrist and our Adapted Sports and Recreation committee has secured panel of athletes to share how they participate in sport. The Forum will take place Saturday, October 26 from 9:00 am – 3:00 pm at the convention center. As a reminder the previous forums have been recorded and on are on the AACPDM website for viewing, please encourage those with lived experience to visit https://www.aacpdm.org/about-us/councils/community-forum. Our committee members continue to share their lived experience with various committees within the academy including our newest committee, Research. Many of our Community Council members will be at the annual meeting, please feel free to chat with us and learn about the work of the Community Council.
Mac Keith Press July 2024 Highlights
A comprehensive and practical course and online resource, Child Development and Disability Essentials introduces the concepts of childhood-onset disability and some of the common disabling neurodevelopmental differences and conditions as well as typical development and common variations. The course has a range of key features, including: Reflective activities and digital workbook Downloadable resources Self-assessment
DMCN August 2024 IssueDMCN Editor's ChoiceThe aim of this paper is to describe current home participation and caregiver's desire for change in home participation of children and adolescents with Down syndrome. Key papers in Developmental Medicine & Child Neurology this month:Diagnostic work-up in malformations of cortical development In this narrative review, the authors provide an overview of the diagnostic approach to malformations of cortical development (MCDs), illustrated with clinical vignettes. MCDs represent a heterogeneous spectrum of disorders, characterized by abnormal development of the cerebral cortex. This study identified prioritized strategies to support improvements in early health service delivery around the diagnosis and management of cerebral palsy for both Māori and non-Māori individuals. Check out the rest of the August 2024 issue here.Visit Early View to see the most recent publications. Top podcast
In this podcast, Aisling Ryan discusses her paper Child-led goal setting and evaluation tools for children with a disability: A scoping review.
Letter from the EditorSummer is flying by and the AACPDM 78th Annual Meeting will be here before we know it! This year's meeting, held in Quebec City, Quebec, CA, will take place over three days of jam-packed programing, including enlightening and innovative sessions, symposia, and seminars. Registration is now open, and travel and lodging information is available. Don't forget, AACPDM members can benefit from discounted registration rates. In addition to the diverse program, there will be opportunities to reconnect with other AACPDM members. All are invited to attend the Welcome Reception on Wednesday, October 23. Tickets are still available for the Networking Gala on Friday, October 25. I’d like to express gratitude to all AACPDM member volunteers whose dedication helps our Academy fulfill its vision to improve the health and well-being of individuals with cerebral palsy and other childhood-onset disabilities. I hope you have a great rest of the summer and look forward to seeing you in Quebec City in October!
Julieanne P. Sees, DO, MBA
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